National Policy for Rare Diseases

The Court was hearing a plea filed by a 41-year-old lady, seeking financial assistance from the Central Government for her medical treatment and care, on account of her being inflicted with Von-Hippel Landaou Syndromeis (VHL), an extremely rare disease

The Ministry of Health and Family Welfare has introduced a draft National Policy for Rare Diseases 2020 on the direction of the Delhi High Court in response to a plea filed seeking free treatment of rare diseases.